A Story

Hello Everyone-
I have started this blog to keep individuals involved in the goings on of my life. As some of you know, things have been difficult lately. I intend to use this to keep others informed and updated about my health. It will also include other things that are important in/to my life. I am realizing that my life is a story. That everyone's life is a story. And this is a way for me to tell and share mine.

This week will be far from easy, as it will decide whether or not I will be returning to school this semester. I have numerous appointments this week. The appointments seem to never end. The constant retelling of medications and symptoms... only to walk out the door a little more limp and a little more drugged up and a little more apathetic and with a little less hope.

In the most recent world of diagnostics... I have been diagnosed with Dysautonomia. Dysautonomia is the umbrella under which the rest of my cardiological and neurological problems fall, including POTS (Postural Orthostatic Tachycardia Syndrome), Neurocardiogenic Syncope, Chronic Orthostatic Hypotension, and a whole lot of other annoying things that I don't feel like listing. If you google it you can find more interesting information, I'm sure. Dysautonomia is another one of those 'invisible' diagnosis. It's one of those uninformative, mostly unhelpful diagnosis that doesn't really tell me anything I didn't already know. In any case, it seems to be a very accurate diagnosis, as I experience all of the symptoms it entails.

I am currently undergoing a slew of tests for antibody dysfunctions, cancers, and a bunch of other weird things no one seems to have heard of.

Things have been far from easy. I feel continually disappointed. However, I have some of the best doctors that are out there. And that really has made the biggest difference.

God is good. And I am learning. I am learning a lot.

-K